Veinteañera tenía terror que se notará su enfermedad a través del bikini. Con esfuerzo logró aceptarlo

Bethany Purnell de 20 años sufre la enfermedad de Crohn, provoca que sufra fatiga, dolor abdominal, incontinencia fecal, diarrea e inflamación crónica del intestino.

Por esta razón, las fotos que publica en su cuenta de Instagram no son las que suelen subir las chicas de su edad.  Bethany publica imágenes de su condición con la finalidad de crear conciencia sobre su enfermedad.

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Old photo & post, but still very relevant so I thought I’d repost ☺️ This is my body and this is my Ostomy bag.point 345 |

Yes, essentially it's a bag full of poop.point 38 | But to me, it's much more than 'a bag full of shit.point 86 | ' I have to wear this bag on my body for the rest of my life.point 136 | Forever.point 144 | No going back, ever.point 161 | So to me, it's much more than a 'gross shit bag' that it's been referred to multiple times.point 251 |

I just need to get this off my chest, everybody poops- GET OVER IT.point 54 | Every single living thing poops.point 82 | . I just do it slightly differently.point 112 | Also, this Ostomy bag is a symbol of my strength.point 152 | It is a symbol of my courage.point 175 | It is a symbol of my bravery and what I have had to go through battling with such an ongoing and debilitating disease.point 271 |

So when I go onto twitter and I see people calling Donald Trump a 'walking colostomy bag,' I simply think what a privilege Donald Trump would be to be on my awesome body!! When I see student nurses complaining about emptying a 'colostomy' bag, I hope to God they have a wake up call and realise that wiping a tiny bit of plastic on the end of a bag is the least of their worries when becoming a Nurse.point 339 |

I got my Ostomy bag 2 years ago, when I was 17 years old after battling Crohn's Disease since I was just 10 years old.point 98 | . My life is hard enough without others using my illness and my medical appliance as an insult.point 176 | Ostomy bags should NOT be seen as an insult.point 212 |

It should not be seen as a 'shit bag' a 'bag full of shit' or anything else but a sign of my bravery & strength.point 108 | EVERYBODY poops, stop acting like a child and sorry for my language but.point 168 | . get the fuck over it!! There's even a poop emoji for crying out loud, why is there still a massive taboo on poo when we even have an EMOJI dedicated to the little guy!?!? ??? #myillnessisnotyourinsultpoint 338 | 1

A post shared by Bethy ✌️ (@bethanypurnell) on Feb 7, 2018 at 10:50am PST

A Beathany le practicaron una Ileostomía, es una intervención médica que consiste en extraer una sección de su colon a través de su abdomen. De esta manera permite que las heces se depositen en una bolsa.

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I am so proud of my body.point 295 |

No matter how many times it’s failed me and put me through shit, it always finds a way of still standing strong.point 93 | In 2015, I dropped down to 6st 4 (88lbs / 40kg) and was unable to eat or drink anything without throwing up.point 180 | . My body gave in and I passed out.point 207 |

.point 1 | Luckily, I passed out in hospital & my mother had to pull the emergency cord and doctors came running in and carried me over to the triage room to pump fluids into me to try and hydrate my poor body.point 165 | In 2016, I had surgery to remove an abscess and part of my very infected intestine.point 233 |

Whilst I was recovering, my heart rate shot up to 250-300bpm and SO many nurses rushed around me to hook me up to an ECG and Oxygen.point 106 | In 2017, I had an allergic reaction to infliximab (Remicade).point 158 | It was my third time retrying the drug and unfortunately my body had a reaction to it and I went supper hot and sweaty and I couldn’t breathe.point 275 |

Once again, there were so many nurses around me and I had to be stabbed with adrenalin to save my life.point 83 | Over the years, my body has almost given up on me… but it’s held on to the last chance of hope! Somehow my body found a way to fight through all these difficult times.point 225 |

Even though my body is fighting itself and my immune system hates itself, my body still manages to try it’s very hardest to work as best as it possibly can.point 129 | My body may be defected, it may not be perfect, it may not be as healthy as others, but it’s MINE and I’m super proud of it for being so strong ☺️point 252 | 1

A post shared by Bethy ✌️ (@bethanypurnell) on Jan 13, 2018 at 9:38am PST

Bethany confesó su miedo:

 “Una de mis mayores preocupaciones antes de hacerme mi bolsa de ileostomía era que se notara a través de mi ropa”.

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I had the biggest surprise yesterday when I woke up! The extremely beautiful, caring & lovely @cellybelly32 aka @freeostomycovers had sent this amazing bag cover for me! It was totally unexpected and it literally brought tears to my eyes.point 451 |

She is such a generous and sweet person who goes out of her own way to create beautiful Ostomy covers for FREE! How incredible is she to take the time to help others? A lot of people find it hard coming to terms with their bags.point 183 | . They think they're ugly and all sorts of (untrue) things.point 236 |

.point 1 | So it means SO much to me that she takes time out of her days to create these beautiful 'art work' to help and support others.point 110 | You are incredible girl!!! From the bottom of my heart, thank you! And I thank you from every single other person in this Ostomy community because of how much time and effort you put into helping others, raising awareness and just being your amazing self! Honestly, thank you! I really do feel like a Super Girl! ?point 368 | 1

A post shared by Bethy ✌️ (@bethanypurnell) on Aug 31, 2017 at 10:16am PDT

“Investigué mucho sobre el tema. Descubrí consejos y trucos para ocultar la bolsa, pero después de que la hice no estoy tan preocupada por si se ve. Estoy orgullosa de mi cuerpo”.

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??? I won't explain or say I'm sorry. I'm unashamed, I'm gonna show my scar. Give a cheer for all the broken. Listen here, because it's who we are ???

A post shared by Bethy ✌️ (@bethanypurnell) on Mar 20, 2017 at 1:41pm PDT

“Siempre he sido abierta y honesta sobre mi bolsa. Cualquier pregunta siempre es bienvenida. Nunca he recibido un mal comentario sobre mi situación”.

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One of my biggest concerns before getting my ileostomy bag was 'will it show under my clothes?' I did a lot of research and found out hundreds of good tips and tricks, but after getting it I'm not too bothered if it shows or not.point 605 |

I'm genuinely proud of myself and my body for handling all that has been thrown at it.point 74 | I've never hidden away, I've always worn what I wanted and I've always been proud.point 154 | I have always been open and honest about my bag and any questions are always welcome.point 224 |

Personally I've NEVER had a bad comment made about me/my bag.point 55 | I'm going on holiday in just over a week and I've never been in the pool, in boiling hot heat or even had my Ostomy on shown in public.point 170 | This is the first time and I'm nervously excited to see how it goes.point 229 |

I'm excited to finally have a holiday without trying to ask someone who doesn't speak good English to URGENTLY use their toilets and explain why.point 129 | Although my Ostomy has brought on a few new anxieties, it's gotta be better than… well… shitting yourself abroad ?point 240 | 1

A post shared by Bethy ✌️ (@bethanypurnell) on Jun 20, 2017 at 12:33pm PDT

“Próximamente me iré de vacaciones y nunca he estado en una piscina. No tengo pena de mostrarme tal como soy,  incluso de enseñar mi ostomía (apertura para un órgano). Estoy nerviosamente entusiasmada por ver cómo resulta”.

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First time being in a bikini at the beach since getting my Ostomy bag! Even went in the sea and we survived ? Just want to say a massive thank you to Jake for all of his support.point 417 |

He's accepted and loved me for who I am and says he wouldn't change me for the world.point 76 | I'm very very lucky and grateful to have him by my side! He lifts me up and always looks out for me and cares for me.point 172 | I'm extremely glad that I got to share this experience with him.point 229 |

I wouldn't choose to do it with anybody else ? @williamjaketaylor ?point 60 | 1

A post shared by Bethy ✌️ (@bethanypurnell) on Jun 21, 2017 at 11:48am PDT

“Hasta este momento de mi vida tendré unas vacaciones sin tener que explicar a alguien que salga rápidamente del baño para que yo pueda usarlo”.

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I'm hooooome!! I got home yesterday afternoon and have been super busy catching up with my Jakey!! So happy to be back, words can't explain how much I've missed him ? I really enjoyed the holiday, it was such a great experience to see how my Ostomy bag works in water & in hot weather etc. And everything went really well!! Just so glad to be back with my baba ??

A post shared by Bethy ✌️ (@bethanypurnell) on Jul 9, 2017 at 10:37am PDT

Bethany ha decidió enfrentar con valentía su enfermedad. En las redes sociales sus seguidores han dado muestras de cariño y admiración.

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